Complex Regional Pain Syndrome (CRPS) is a topic near and dear to my heart, but a difficult topic for me to discuss with those outside of very close family members and friends.
10 years ago, I went in for a routine blood draw and during my drive home afterward, I began feeling a plethora of disturbing symptoms: numbness, tingling, swelling, and pain at the blood draw site that radiated/spread into my forearm, wrist, hand, and fingers.
The symptoms steadily grew worse on my drive home to the point that I could no longer close my hand and make a fist shortly after arriving home. My fingers looked like fat, red sausages and my hand and wrist were swollen beyond belief.
New symptoms kept appearing: sweaty palm, intense burning sensations, waxy/shiny skin that made my fingers, hand, wrist, and forearm look like they belonged on a mannequin, and several other forms of pain. I was in constant pain 24/7 and in a lot of distress over what was going on.
After seeing my primary care physician, having an ultrasound, a MRI, and seeing 2 to 3 different specialists, I was finally diagnosed with Complex Regional Pain Syndrome (CRPS) 2 to 3 months after the blood draw that caused it.
Complex Regional Pain Syndrome (CRPS) is not curable, but can go into remission. There is loads of information about it online and not all of the information is positive.
Long story short, Complex Regional Pain Syndrome (CRPS) has been a difficult journey with various highs and lows. I've recently had a pretty bad flare up (which is still ongoing) beginning in early August 2019 that has kept me from doing much blogging and other basic daily activities without some assistance. I've given up on knitting and several other activities for the time being as well.
So if you don't see me posting much on my blog or responding to comments you leave for me... or don't find me commenting on your blog posts... please don't take it personally. I'm currently on a healing journey.
I've recently read Positive Options for Complex Regional Pain Syndrome (CRPS): Self-Help and Treatment by Elena Juris and have come away with a renewed outlook regarding CRPS. I am armed with new information and look forward to trying some new protocols. Onward I MUST go!!
Here's a summary for Positive Options for Complex Regional Pain Syndrome (CRPS): Self-Help and Treatment by Elena Juris from Amazon:
Imagine if the mere breeze of an air conditioner on your skin were to cause excruciating pain. For those suffering from Complex Regional Pain Syndrome (CRPS), previously called Reflex Sympathetic Dystrophy (RSD), this crippling neuropathic pain poses an unrelenting reality. With symptoms such as swelling, hypersensitivity, stiffness, burning pain, and temperature abnormalities, CRPS can develop at any time and quickly leaves its victims disabled and isolated.
This book explains CRPS in an accessible style for all readers, providing the latest medical treatments, complementary therapies, and holistic coping strategies for maximizing the potential for healing. Readers will find a wealth of tips on life modifications to help better manage their condition. They'll find two interviews with practitioners who offer insights every patient should know, with the help of pain specialist Edward Carden, MD, and occupational therapist and neurological acupuncturist Sheri Barnes. They'll find a discussion of complementary therapies to tailor to their needs. They'll find a list of "dynamite distractions" that can refresh the pain-wracked mind and help readers rediscover their imagination and humor, when they just need to take their mind off the illness. They'll draw hope from real patient testimonies on techniques for transforming the pain and discomfort of CRPS. They'll find a chapter addressed to loved ones, providing advice and support in their difficult roles as encouragers and caregivers. Finally, readers will find information on how everyone can help to increase CRPS awareness, and an extensive list of resources to help patients and caregivers begin to connect with the support available.
CRPS remains a mysterious, poorly understood condition and few books about it exist, as knowledge of the syndrome continues to evolve. Previously, the condition was called Reflex Sympathetic Dystrophy (RSD). This second, retitled edition to the original Positive Options for Reflex Sympathetic Dystrophy (RSD): Self-help and Treatment (2004) is chock-full of new information, reflecting a decade's worth of advancements following the popular debut of the book's first edition.I am giving Positive Options for Complex Regional Pain Syndrome (CRPS): Self-Help and Treatment by Elena Juris 4 stars out of 5 stars.
Until my next post, happy reading!